For Hurting Parents Who Deal With Insensitive Comments
Dear Hurting Parent, I’ve been there. As the mother of a 9-year old daughter with Down syndrome, I know what it feels like when someone says something negative or insensitive about your child, even if...
View Article3 Myths About Down Syndrome
As the parent of a 9-year old daughter with Down syndrome (see right), I pay attention to stories about children with this condition all the time. But it seems that the whole country (or at least...
View ArticleYes, Reading IS Possible for Kids With Down Syndrome
When our daughter Penny was diagnosed with Down syndrome at birth, I experienced many of the emotions that are typical for parents who receive unexpected news about their child. I felt guilt, sadness,...
View Article21 Beautiful Faces of Down Syndrome From Around the World
To celebrate World Down Syndrome Day on March 21, I reached out to parents around the world who have children with Down syndrome, as well as adults with Down syndrome, to share photos and descriptions...
View ArticlePrenatal Testing for Down Syndrome: Understanding Two New Studies
Ten years ago, when I was 28-years-old and pregnant with my first child, I didn’t spend much time thinking about prenatal testing. I was young and healthy, which meant it was unlikely for me to be...
View Article4 Ways to Enjoy Family Vacation With a Special-Needs Child
My husband, three kids, and I recently took our first official family vacation. The five of us flew south together for the first time to a lovely and family-friendly resort. We enjoyed a week of...
View Article20+ Amazing Kids With Autism From Around the World
Autism presents on a wide spectrum, and there’s a saying in the ASD community: “If you’ve met one person with autism, well, you’ve met just one person with autism.” This quip speaks to the tremendous...
View ArticleFour Ways to Navigate Day Camp This Summer
A few months ago I began the herculean task of figuring out our family’s summer camp situation. Our kids range in age from 9 ½ to 4, they have different interests, and our oldest daughter Penny has...
View ArticleWhy I Post Photos of My Child with Down Syndrome Online
A few weeks ago, the mother of a child with Down syndrome discovered that photos of her daughter had been stolen. Even worse, these photos had been stolen for the purpose of promoting prenatal genetic...
View ArticleChanging Expectations for Kids with Down Syndrome
When I first discovered that our daughter Penny had Down syndrome, I had all sorts of questions about her future. Many of those questions came in the form of fears. I worried about all the things she...
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