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For Hurting Parents Who Deal With Insensitive Comments

Dear Hurting Parent, I’ve been there. As the mother of a 9-year old daughter with Down syndrome, I know what it feels like when someone says something negative or insensitive about your child, even if...

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3 Myths About Down Syndrome

As the parent of a 9-year old daughter with Down syndrome (see right), I pay attention to stories about children with this condition all the time. But it seems that the whole country (or at least...

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Yes, Reading IS Possible for Kids With Down Syndrome

When our daughter Penny was diagnosed with Down syndrome at birth, I experienced many of the emotions that are typical for parents who receive unexpected news about their child. I felt guilt, sadness,...

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21 Beautiful Faces of Down Syndrome From Around the World

To celebrate World Down Syndrome Day on March 21, I reached out to parents around the world who have children with Down syndrome, as well as adults with Down syndrome, to share photos and descriptions...

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Prenatal Testing for Down Syndrome: Understanding Two New Studies

Ten years ago, when I was 28-years-old and pregnant with my first child, I didn’t spend much time thinking about prenatal testing. I was young and healthy, which meant it was unlikely for me to be...

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4 Ways to Enjoy Family Vacation With a Special-Needs Child

My husband, three kids, and I recently took our first official family vacation. The five of us flew south together for the first time to a lovely and family-friendly resort. We enjoyed a week of...

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20+ Amazing Kids With Autism From Around the World

Autism presents on a wide spectrum, and there’s a saying in the ASD community: “If you’ve met one person with autism, well, you’ve met just one person with autism.” This quip speaks to the tremendous...

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Four Ways to Navigate Day Camp This Summer

A few months ago I began the herculean task of figuring out our family’s summer camp situation. Our kids range in age from 9 ½ to 4, they have different interests, and our oldest daughter Penny has...

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Why I Post Photos of My Child with Down Syndrome Online

A few weeks ago, the mother of a child with Down syndrome discovered that photos of her daughter had been stolen. Even worse, these photos had been stolen for the purpose of promoting prenatal genetic...

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Changing Expectations for Kids with Down Syndrome

When I first discovered that our daughter Penny had Down syndrome, I had all sorts of questions about her future. Many of those questions came in the form of fears. I worried about all the things she...

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